just wondering if anybody knows anyone with this

[DrownedFishonFire]

Wow. What about potty training at 4 is she delayed in that area
?

 

[Cakilla]

they would be AMAZING huge, my mates r small and a bit weedy for my liking, nothing like a nice big tattoo.
i draw loads and designed all my own tattoos, got the next 2 drawn up...just waiting for the money lol
x

I totally know what ya mean, Tats can get expensive, I am going to try talking to a few tat artists around here to see if I do some work for them ( draw up some new tats for them ine xchange for a tat.. just an idea)
if not I will save up and get them done.

Right now I have 3 tats that I did myself, they turned out pretty good but going to get the rest of mine proffesionally done.

 

[chloe]

wow, so age isnt a factor. prob because of family history.
sounds like she does ok, exspecially considering her trisomoy. like i said, most with trisomoy end up with severe mental retardation or death. Alot of that can prob be worked on with the proper help(except obviously the random sight loss) U and her are very lucky.
keep us updated on her!!

nope its nothing to do with family lol my family all thought she would have got it from me because i can b a bit slow at times lol but we had the blood tests and im not a carrier so i had to contact her dad and he agreed to do one, but i dont know if hes done it or what...but i have no results either way, so im a bit annoyed about that.
tbh i think it could swing either way, they say it could be possible it gets worse as she gets older, but no one really knows.
i think they r just iving me all the options just to be on the safe side.

 

[chloe]

Wow. What about potty training at 4 is she delayed in that area
?

nope potty training was done and dusted just after one...except at night, her brain doesnt have the thing that tells the brain to stop making wee at night. but with only 3 hours kip a night it doesnt really make too much difference lol

 

[Lepisosteus platyrhincus]

nope its nothing to do with family lol my family all thought she would have got it from me because i can b a bit slow at times lol but we had the blood tests and im not a carrier so i had to contact her dad and he agreed to do one, but i dont know if hes done it or what...but i have no results either way, so im a bit annoyed about that.
tbh i think it could swing either way, they say it could be possible it gets worse as she gets older, but no one really knows.
i think they r just iving me all the options just to be on the safe side.

it could get worse as she gets older but u got to look twords the positive side. like i said before trimosoy of most chromosomes can and does cause either severe mental retardation or death. For her to be as functional as she is then ur lucky! even if she does end up getting worse(which she might not, just have to be prepared) then u at least got some good years. most do not get that. i hope she does well!! any pics of the little one??

 

[chloe]

it could get worse as she gets older but u got to look twords the positive side. like i said before trimosoy of most chromosomes can and does cause either severe mental retardation or death. For her to be as functional as she is then ur lucky! even if she does end up getting worse(which she might not, just have to be prepared) then u at least got some good years. most do not get that. i hope she does well!! any pics of the little one??

i dont care what happens shes still my el-bell.
yea il dig out some pics from holiday, all she did was pose for the camera lol

 

[chloe]

sorry i just got to stick all these up coz they were so funny, she was just pulling face after face after face

 

[kdrun76]

I had a nephew with trisomy 18, he was treasured and dear, but he never had a chance at survival.

Best of luck.... lots of good wishes headed your way. Your path will be a long one.

 

[Neervana]

hey babe, glad to hear u managed to get in touch with el's dad. hope it all goes well for u from here on. u have my number if u need any support im just a phone call away! she looks lovely in her pictures, keep ur hopes up and sending u both loads of hugs and kisses

 

[chloe]

I had a nephew with trisomy 18, he was treasured and dear, but he never had a chance at survival.

Best of luck.... lots of good wishes headed your way. Your path will be a long one.

cheers hun, we make the most of it no matter what.
sorry for your loss though, i couldnt imagine